In Russia, 76% of citizens with rare diseases have received benefits for medicines
76% of Russians with rare diseases have benefits for receiving medicines. Irina Myasnikova, Chairman of the Board of the All-Russian Society of Rare (Orphan) Diseases, told about this on March 11 at a press conference on the topic: "Orphan Forum: a dialogue between representatives of government authorities, the medical and patient community."
She clarified that the survey was conducted among 2,652 patients with rare diseases from 86 regions of Russia.
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