Main

The site is operated with the financial support of the Ministry of Digital Development, Communications and Mass Media of the Russian Federation.

The information resource uses recommendation technologies. More detailed

Registered by the Federal Service for Supervision of Communications, Information Technology and Mass Communications. Certificates of registration Certificate of registration: EL № FS 77 - 76208 dated July 8, 2019, Certificate of registration: EL № FS 77 - 72003 dated December 26, 2017.

Фийон отрицает организацию встречи ливанского бизнесмена с Путиным

20 Марта
All results

Live broadcast

Society

The lawyer listed the problems of patients with orphan diseases in Russia

Thu, 02/26/2026 - 13:41

Photo: IZVESTIA/Anna Selina

Озвучить текст

Select important

Off

In Russia, adult patients with orphan pathologies have not received access to drug therapy. Natalia Smirnova, lawyer of the All-Russian Society of Orphan Diseases, member of the Expert Council on Rare Diseases at the Committee on Health Protection of the State Duma of the Russian Federation, told about this at a press conference "Rare diagnoses require systemic solutions" on February 26.

All important news is on the Izvestia channel in the MAX messenger.

The news is being updated

Переведено сервисом «Яндекс Переводчик»

To share:

Live broadcast

Subscribe and get the news first

Copyright for the iz.ru portal content visualisation system, as well as for the source data, including texts, photos, audio and video materials, graphic images, other works and trademarks, belongs to "MIC Izvestia" LLC

Partial quotation is possible only with a hyperlink to en.iz.ru

The site is operated with the financial support of the Ministry of Digital Development, Communications and Mass Media of the Russian Federation.

The advertiser is responsible for the content of any advertising materials posted on the portal.

The information resource uses recommendation technologies. More detailed

The news, analytics, forecasts and other materials presented on this website do not constitute an offer or recommendation to buy or sell any assets.

Registered by the Federal Service for Supervision of Communications, Information Technology and Mass Communications. Certificates of registration Certificate of registration: EL № FS 77 - 76208 dated July 8, 2019. , Certificate of registration: EL № FS 77 - 72003 dated December 26, 2017.