The Izvestia News Center's press center will talk about modern approaches to early detection of orphan pathologies.

On February 26, at 13:00, a press conference on the topic "Rare diagnoses require systemic solutions" will be held at the Izvestia News Center.

They will talk about the availability of diagnosis and treatment of patients with rare (orphan) diseases, patient routing, drug provision, as well as the role of non-profit organizations in the care system.:

- Yuri Zhulev, Co-Chairman of the All-Russian Union of Patients, President of the All-Russian Society of Hemophilia;

-Irina Myasnikova, Co-Chairman of the All-Russian Union of Patients, Chairman of the Board of the All-Russian Society of Orphan Diseases;

- Nelya Poghosyan, Deputy Chairman of the Board of the All-Russian Society of Orphan Diseases;

- Natalia Smirnova, Lawyer at the All-Russian Society of Orphan Diseases, member of the Expert Council on Rare Diseases at the Committee on Health Protection of the State Duma of the Russian Federation.

Moderator - Ekaterina Zakharova, MD, Associate Professor, Head of the Laboratory of Hereditary Metabolic Diseases of the Federal State Budgetary Budgetary Institution "MGNC", Director of ANO INBO "OMICS".

For FULL-time accreditation to the press center, you must send an email press-center@iz.ru send your full name, media name, series and passport number.

Important: Media representatives can participate in the press conference ONLINE with prior accreditation. To do this, send an email press-center@iz.ru Full name, media name, and mobile number linked to the installed Telegram app.

The broadcast will be available on the website iz.ru .

Media accreditation: press-center@iz.ru , tel. (495) 937-61-70, ext. 4805, 4236

Entrance for media representatives is subject to prior accreditation upon presentation of a passport.

Address: Moscow, Party lane, 1, room 57, building 3, 2nd floor.

Learn more about the events of the press center on the website.