Izvestia Medical Center will tell about medical care for adult patients with orphan diseases

On December 15, at 13:00, a press conference of the All-Russian Society of Rare (Orphan) Diseases (AOI) will be held at the Izvestia International Medical Center on the topic: "Problems and prospects of medical care for adult patients with orphan diseases in Russia".

They will talk about the medical care of adult patients with rare diseases and the further development of the medical care system.:

-Natalia Smirnova, lawyer of the first category, member of the Expert Council on Rare Diseases at the Committee on Health Protection under the State Duma of the Russian Federation, lawyer at BOAZ;

- Irina Myasnikova, Chairman of the Board of the All-Russian Orphan Diseases Society, Member of the Board of Trustees of the Circle of Goodness Foundation;

-Sergey Klyushnikov, PhD, Leading researcher at the 5th Neurological Department of the Federal State Budgetary Budgetary Institution "Scientific Center of Neurology".

Moderator - Ekaterina Zakharova, MD, Head of the Laboratory of Hereditary Metabolic Diseases of the Federal State Budgetary Budgetary Institution of the Russian Academy of Medical Sciences. Academician N. P. Bochkova, Chairman of the Expert Council of the All-Russian Society of Rare (Orphan) Diseases.

For FULL-time accreditation to the press center, you must send an email press-center@iz.ru send your full name, media name, series and passport number.

Important: Media representatives can participate in the press conference ONLINE with prior accreditation. To do this, send an email press-center@iz.ru Full name, media name, and mobile number linked to the installed Telegram app.

The broadcast will be available on the website iz.ru .

Media accreditation: press-center@iz.ru , tel. (495) 937-61-70, ext. 4805, 4236

Entrance for media representatives is subject to prior accreditation upon presentation of a passport.

Address: Moscow, Party lane, 1, room 57, building 3, 2nd floor.

Learn more about the events of the press center on the website.