The expert listed the main problems of patients with rare diseases in Russia

At the treatment stage, patients with rare diseases faced problems of incomplete examination, long waiting times for rehabilitation, or low doctor competence. Irina Myasnikova, Chairman of the Board of the All-Russian Society of Rare (Orphan) Diseases, told about this on March 11 at a press conference on the topic: "Orphan Forum: a dialogue between representatives of government authorities, the medical and patient community."

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