The Izvestia Medical Center's press center talks about the development of the orphan patient care system. Broadcast

On Wednesday, March 11, a press conference on the topic "Orphan Forum: a dialogue between representatives of government authorities, the medical and patient community" will be held at the Izvestia press center.

They will talk about the drug provision for adult patients with rare diseases and the development of the medical care system for orphan patients.:

- Yan Vlasov, Co-Chairman of the All-Russian Union of Patients;

- Irina Myasnikova, Chairman of the Board of the All-Russian Society of Rare (Orphan) Diseases "VOZ";

- Tatiana Strokova, MD, Professor of the Russian Academy of Sciences, Head of the Department of Pediatric Gastroenterology, Hepatology and Dietotherapy at the Federal State Budgetary Institution "FITZ Nutrition and Biotechnology", Head of the Department of Gastroenterology and Dietetics at the N.I. Pirogov Russian National Research Medical University.

Moderator — Ekaterina Zakharova, MD, Associate Professor, Head of the Laboratory of Hereditary Metabolic Diseases of the Federal State Budgetary Budgetary Institution "MGNC".