The Izvestia Medical Center's press center will talk about the development of the orphan patient care system.

On March 11, at 13:00, a press conference on the topic "Orphan Forum: a dialogue between representatives of government authorities, the medical and patient community" will be held at the Izvestia press center.

They will tell about the drug provision for adult patients with rare diseases and the development of the medical care system for orphan patients:

- Yan Vlasov, Co-Chairman of the All-Russian Union of Patients;

-Irina Myasnikova, Chairman of the Board of the All-Russian Society of Rare (Orphan) Diseases "BOAZ";

-Tatiana Strokova, MD, Professor of the Russian Academy of Sciences, Head of the Department of Pediatric Gastroenterology, Hepatology and Dietotherapy at the Federal State Budgetary Institution "FITZ Nutrition and Biotechnology", Head of the Department of Gastroenterology and Dietetics at the N.I.Pirogov Russian National Research Medical University.

The moderator is Ekaterina Zakharova, MD, Associate Professor, Head of the Laboratory of Hereditary Metabolic Diseases of the Federal State Budgetary Budgetary Institution "MGNC".

For FULL-time accreditation to the press center, you must send an email press-center@iz.ru send your full name, media name, series and passport number.

Important: Media representatives can participate in the press conference ONLINE with prior accreditation. To do this, send an email press-center@iz.ru Full name, media name, and mobile number linked to the installed Telegram app.

The broadcast will be available on the website iz.ru .

Media accreditation: press-center@iz.ru , tel. (495) 937-61-70, ext. 4805, 4236

Entrance for media representatives is subject to prior accreditation upon presentation of a passport.

Address: Moscow, Party lane, 1, room 57, building 3, 2nd floor.

Learn more about the events of the press center on the website.