The deputy spoke about the expansion of state support for patients with rare diseases

The government is consistently expanding measures to support patients with rare (orphan) diseases, creating conditions for their continuous treatment in adulthood. This was stated on October 13 by Alexander Rumyantsev, Deputy of the State Duma of the Russian Federation, Chairman of the Expert Council of the State Duma Committee on Health Protection for Rare Diseases, at the Izvestia press center at a press conference on: "Lists of state guarantees for orphan patients. For the state or for patients? How to negotiate."

"Adults often do not have the funding to provide them with medicines in a federal subject. As you know, a decision has been made since 2026, and special conditions have been developed for this. Those regions that are unable to provide patients with orphan diseases according to the list of the Ministry of Health can apply to federal authorities to receive a subsidy to finance such patients. This is a step that we have already taken," Rumyantsev said.

He added that serious work is underway at the federal level to eliminate gaps in the care system for those patients who are moving from a children's program to an adult one.

Alexander Rumyantsev, State Duma Deputy, President of the Dmitry Rogachev National Research Medical Center for Pediatric Hematology, Oncology and Immunology, Academician of the Russian Academy of Sciences, told the Izvestia News Center on March 25 that technologies for the treatment and diagnosis of orphan (rare) diseases are rapidly developing in Russia

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