The Izvestia Medical Center is discussing state guarantees for orphan patients. Broadcast

On October 13, a press conference on the topic will be held at the Izvestia press center.: "Lists of state guarantees for orphan patients. For the state or for patients? How to negotiate!".

The participants discuss what are the current mechanisms for providing medicines and medical care to patients with rare diseases, which regulatory documents play a key role, and how to achieve a balance between the needs of patients and the resources of the state.

Participants:

— Alexander Rumyantsev, Deputy of the State Duma of the Russian Federation, Chairman of the Expert Council of the State Duma Committee on Health Protection for Rare Diseases;

— Yuri Skvortsov, Deputy Chairman of the Kuzbass Parliament, Chairman of the Committee on Veterans' Affairs, Social Policy and Healthcare;

— Svetlana Karimova, President of the National Association "Genetics", member of the Public Council of the Ministry of Health of the Russian Federation, member of the Expert Council of the State Duma Committee on Health Protection for Rare Diseases;

— Vadim Kukava, Executive Director of the Association of Pharmaceutical Companies "Infarma";

— Natalia Smirnova, first class lawyer, member of the Expert Council of the State Duma Committee on Health Protection for Rare Diseases;

— Snezhanna Gorchakova, Chairman of MBOO HUNTER SYNDROME, member of the Board of Trustees of the Circle of Goodness Foundation.

All important news is on the Izvestia channel in the MAX messenger.