Patients with hemophilia complained about the non-delivery of drugs

Since the beginning of 2025, at least nine regions have experienced drug delivery disruptions, the All-Russian Hemophilia Society told Izvestia. We are talking about the Moscow, Saratov, Tver, Orel, Smolensk regions, Tatarstan, Bashkiria, Perm and Krasnoyarsk territories.

The code of life: how to achieve drug safety in Russia

Experts and business discussed the availability of drugs and innovations in the field of pharmacy

Patients say that they are denied access to medicines with the active ingredients "coagulation factor VIII", "coagulation factor IX", "simoctokog alpha" and "coagulation factor VIII + Willebrand factor". All of them are purchased under the state program "14 high-cost nosologies" and are provided to patients free of charge. Purchases of such drugs are financed from the federal budget.

The All-Russian Society of Hemophilia has sent a letter to the Ministry of Health with a request to resolve the issue of drug availability.

"The interruption of drug therapy or a significant reduction in dosages in patients with hemophilia can lead to tragic consequences and negates all the achievements and results of previous years," the appeal emphasizes.

Drugs that have been disrupted are necessary to immediately stop bleeding, said Yuri Zhulev, President of the All-Russian Society of Hemophilia.

"If the bleeding is not stopped in a timely manner, the destruction of joint tissues begins: inflammation, swelling occurs, cartilage and bone surfaces are damaged," he added.

According to him, repeated hemorrhages in the joints lead to chronic pain, loss of mobility and disability in adults, and in children they can negatively affect physical development.

Read more in the exclusive Izvestia article:

Stop the blood: patients with hemophilia risk their lives due to non-administration of drugs