Izvestia Medical Center will tell about medical care for orphan patients

On June 6, at 13:00, a press conference of the All-Russian Society of Rare (Orphan) Diseases on the topic "A life route for patients with rare diseases" will be held at the Izvestia press center.

They will talk about drug provision for patients with rare diseases, the further development of the medical care system, as well as topical issues of screening and patient support as they grow up.:

-Sergey Kutsev, Director of the MGNC, Chief Freelance Specialist in Medical Genetics at the Russian Ministry of Health, Academician of the Russian Academy of Sciences;

-Ekaterina Zakharova, MD, Professor, Head of the Laboratory of Hereditary Metabolic Diseases of the Moscow State Medical University. Academician N. P. Bochkova, Chairman of the Expert Council of the All-Russian Society of Rare (Orphan) Diseases;

-Svetlana Mikhailova, Neurologist, Head of the Department of Medical Genetics at the Russian Children's Clinical Hospital;

-Lyudmila Kuzenkova, MD, Head of the Department of Neuropsychiatry and Psychosomatic Neurology at the National Research Medical Center for Children's Health of the Russian Ministry of Health;

-Alexander Pampura, MD, Head of the Department of Allergology and Clinical Immunology at the Yu.E. Veltischev Institute of Pediatrics and Pediatric Surgery of the Pirogov Russian National Research Medical University of the Ministry of Health of the Russian Federation;

-Natalia Smirnova, Lawyer at the All-Russian Society of Rare (Orphan) Diseases.

For FULL-time accreditation to the press center, you must send an email press-center@iz.ru send your full name, media name, series and passport number.

Important: Media representatives can participate in the press conference ONLINE with prior accreditation. To do this, send an email press-center@iz.ru Full name, media name, and mobile number linked to the installed Telegram app.

The broadcast will be available on the website iz.ru .

Media accreditation: press-center@iz.ru , tel. (495) 937-61-70, ext. 4805, 4236

Entrance for media representatives is subject to prior accreditation upon presentation of a passport.

Address: Moscow, Party lane, 1, room 57, building 3, 2nd floor.

Learn more about the events of the press center on the website.