The Izvestia Medical Center discusses the problems of patients with rare diseases. Broadcast

On April 23, a round table on the topic "Rare adults: a direct public conversation" is being held in the Izvestia press center.

They will talk about improving the system of medical care for adult patients with orphan diseases, as well as about the problems of accessibility of medicines in the regions.:

- Kirill Kulyaev, lawyer of ANO "House of Rare";

- Elena Balabanova, President of the NGO Society of Patients with Phenylketonuria;

- Elena Shestopalova, geneticist, Head of the Medical and Genetic Department of the MSCC. Loginov;

- Zhanna Belaya, MD, Professor, endocrinologist, Head of the Osteoporosis Center, Head of the Department of Osteoporosis and Osteopathy of the National Research Medical Center of the Russian Federation, Federal State Budgetary Institution "NMIC of Endocrinology" of the Ministry of Health of the Russian Federation;

- Marina Dorofeeva, neurologist, Candidate of Medical Sciences, Doctor of the highest category, Leading Researcher at the Department of Neuropsychiatry and Epileptology of the Yu.E. Veltishchev Institute of Pediatrics of the Pirogov Russian National Research Medical University of the Ministry of Health of the Russian Federation;

- Sergey Voloshin, PhD, Deputy Chief Physician of the Leningrad Regional Clinical Hospital;

- Olga Dvorina, PhD, Cardiologist, Associate Professor of the Department of General Medical Practice of MONICA;

- Zhanna Cefranova, First Deputy Chairman of the Federation Council Committee on Social Policy, MD, Professor;

- Tatiana Reichtman, Advisor to the Commissioner for Human Rights in the Russian Federation, State Counselor of the Russian Federation 1st Class, Doctor of Pharmaceutical Sciences, Professor.