Izvestia Medical Center will talk about the problems of medical care for patients with rare diseases in the regions

On April 23, at 3 p.m., a round table on the topic "Rare adults: a direct public conversation" will be held at the Izvestia press center.

They will talk about improving the system of medical care for adult patients with orphan diseases, as well as about the problems of accessibility of medicines in the regions.:

- Leonid Ogul, First Deputy Chairman of the State Duma Committee on Health Protection, MD.;

- Kirill Kulyaev, lawyer of ANO "House of Rare";

- Elena Balabanova, President of the NGO Society of Patients with Phenylketonuria;

- Elena Shestopalova, geneticist, Head of the Medical and Genetic Department of the MSCC. Loginov;

- Zhanna Belaya, MD, Professor, endocrinologist, Head of the Osteoporosis Center, Head of the Department of Osteoporosis and Osteopathy of the National Research Medical Center of the Russian Federation, Federal State Budgetary Institution "NMIC of Endocrinology" of the Ministry of Health of the Russian Federation;

- Marina Dorofeeva, neurologist, Candidate of Medical Sciences, Doctor of the highest category, Leading Researcher at the Department of Neuropsychiatry and Epileptology of the Yu.E. Veltishchev Institute of Pediatrics of the Pirogov Russian National Research Medical University of the Ministry of Health of the Russian Federation;

- Natalia Minaeva, Hematologist, Ph.D., Deputy Director for Medical Work at the Federal State Budgetary Educational Institution of Higher Medical Education of the Russian Federation;

- Olga Dvorina, PhD, Cardiologist, Associate Professor of the Department of General Medical Practice of MONICA;

- Tatiana Reichtman, Advisor to the Commissioner for Human Rights in the Russian Federation, State Counselor of the Russian Federation 1st Class, Doctor of Pharmaceutical Sciences, Professor.

The moderator is Anastasia Tatarnikova, Chairman of the ANO "House of Rare".

For FULL-time accreditation to the press center, you must send an email press-center@iz.ru send your full name, media name, series and passport number.

Important: Media representatives can participate in the press conference ONLINE with prior accreditation. To do this, send an email press-center@iz.ru Full name, media name, and mobile number linked to the installed Telegram app.

The broadcast will be available on the website iz.ru .

Media accreditation: press-center@iz.ru , tel. (495) 937-61-70, ext. 4805, 4236

Entrance for media representatives is subject to prior accreditation upon presentation of a passport.

Address: Moscow, Party lane, 1, room 57, building 3, 2nd floor.

Learn more about the events of the press center on the website.