The Izvestia MRC talks about neonatal screening and drug provision for orphan patients. Broadcast

A joint press conference of the Circle of Goodness Foundation and the Bochkov Medical and Genetic Research Center (MGNRC) is being held on Monday, February 24, at the press center of Izvestia.

Experts discuss a wide range of topics: the results of the neonatal screening program for 2024 and its audit, drug provision for children with severe and rare diseases, as well as patients transitioning from the care of the Circle of Good to the adult network, new proposals to expand genetic testing.

Participants:

- Sergey Kutsev, director of the MGNTS, chief freelance specialist in medical genetics of the Russian Ministry of Health, academician of the Russian Academy of Sciences;

- Archpriest Alexander Tkachenko, Chairman of the Board of the Circle of Goodness Foundation, Chairman of the Commission of the Public Chamber of the Russian Federation on Social Partnership, Care and Development of Inclusive Practices;

- Sergey Voronin, Chief Physician of the Moscow State Medical Center.