Izvestia will talk about neonatal screening and drug provision for orphan patients at the Izvestia MRC

On February 24 at 11:00 a.m., the Izvestia Media Center will host a joint press conference of the Circle of Goodness Foundation and the Bochkov Medical and Genetic Research Center (MGNRC). Experts will cover a wide range of topics: the results of the neonatal screening program for 2024 and its audit, drug provision for children with serious and rare diseases, as well as patients transitioning from the care of the Circle of Good to the adult network, new proposals to expand genetic testing.

Participants:

-Sergey Kutsev, Director of the MGNTS, Chief Outside Specialist in Medical Genetics of the Russian Ministry of Health, Academician of the Russian Academy of Sciences;

-Propriest Alexander Tkachenko, Chairman of the Board of the Circle of Goodness Foundation, Chairman of the Commission of the Public Chamber of the Russian Federation on Social Partnership, Care and Development of Inclusive Practices;

-Sergey Voronin, Chief Physician of the Moscow State Medical Center.

For full-time accreditation to the press center please send your full name, media name, passport series and number to press-center@iz.ru.

Important: Media representatives can take part in the press conference ONLINE with prior accreditation. To do this, please send your full name, media name and mobile number linked to the installed Telegram application to press-center@iz.ru.

The broadcast will be available on the iz.ru website.

Media accreditation: press-center@iz.ru, tel. (495) 937-61-70, ext. 4805, 4236

Entrance for media representatives by prior accreditation upon presentation of passport.

Address: Moscow, Partijny pereulok, 1, b.57, p.3, 2nd floor.

More information about the events of the press center on the website.