Izvestia MRC will discuss the possibilities of a support system for patients with neurofibromatosis

OnDecember 10 at 11:00 a.m., the Izvestia MediaCenter will host a press conference on the topic: "Seven Years of Neurofibromatosis Patient Support System in Russia".

On the current situation with the incidence of neurofibromatosis in Russia, key tasks and opportunities for further development of the patient support system, as well as achievements in the field of medical care for children with neurofibromatosis will tell:

- Natalia Kulakova, Head of the Project Activities Department of the Circle of Goodness Foundation;

- Marina Dorofeeva, neurologist-epileptologist, Candidate of Medical Sciences, Head of the Phacomatosis Center of the Y.E. Veltischev Research Institute of Pediatrics and Children's Surgery of the N.I. Pirogov Russian National Research Institute of Pediatrics and Children's Surgery of the Russian Ministry of Health;

- Yulia Dinikina, hematologist, Candidate of Medical Sciences, Head of the Department of Chemotherapy of Oncohematologic Diseases and Bone Marrow Transplantation, V.A. Almazov National Medical Center of the Russian Ministry of Health;

- Vladimir Strelnikov, Head of the Epigenetics Laboratory of the N.P. Bochkov FGBNU MGNSC, Doctor of Biological Sciences, Professor of the Department of General and Medical Genetics of the N.I. Pirogov Russian National Research Medical University, Ministry of Health of Russia. N.I. Pirogov Russian National Research Medical University of the Ministry of Health of Russia;

- Evgenia Logacheva, Medical Director, Oncology and Rare Diseases, AstraZeneca;

- Yury Zhulyov, Co-Chairman of the All-Russian Patients' Union;

- Anna Chistoprudova, founder of the MROO of assistance to patients with neurofibromatosis "22/17".

For full-time accreditation to the press center please send your full name, media name, passport series and number topress-center@iz.ru.

Important: Media representatives can take part in the press conference ONLINE with prior accreditation. To do this, please send your full name, media name and mobile number linked to the installed Telegram application to press-center@iz.ru.

The broadcast will be available on the iz.ru website.

Media accreditation: press-center@iz.ru, tel. (495) 937-61-70, ext. 4805, 4236.

Entrance for media representatives by prior accreditation upon presentation of passport.

Address: Moscow, Partijniy pereulok, b. 1, к. 57, p. 3, 2nd floor.

More information about the events of the press center - on the website.